Recognising and Addressing the Impact of Long Covid

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Conference
2024 National Disabled Members' Conference
Date
3 July 2024
Decision
Carried

Long Covid, a condition that emerged from the COVID-19 pandemic, remains a poorly understood medical issue, even among clinicians. The severity of initial symptoms does not necessarily predict the likelihood of developing Long Covid, with individuals experiencing mild initial symptoms still at risk for long-term complications. Recovery from Long Covid varies greatly among individuals, with some experiencing symptoms for three months, a year, or even longer after initial infection.

Long Covid is not defined by a single symptom or a set of symptoms but is a complex medical condition linked to COVID-19 infection. Its symptoms can affect multiple parts of the body, including but not limited to:

– Autoimmune-like symptoms (muscles/joints aches and pains)

– Respiratory issues (breathing difficulties)

– Neurological symptoms (headaches, dizziness, vision and hearing issues)

– Psychological disorders (anxiety, depression)

– Digestive and bowel problems

– Cognitive issues (confusion, brain fog, concentration difficulties)

These symptoms can fluctuate, worsen or improve over time, making the condition unpredictable and difficult to manage. Currently, there is no cure for Long Covid.

Long Covid has had devastating effects on many people, particularly those with pre-existing disabilities and other health issues. Disabled members, often among the lowest paid in sectors such as health, social care, and other public services, face additional burdens due to Long Covid. They struggle to maintain their employment and face increasing financial difficulties. Additionally, assessments for benefits like PIP and DWP disability benefits often fail to accurately recognise the impact of Long Covid, further compounding these challenges.

There is widespread misunderstanding about disabilities, particularly non-apparent ones. People with Long Covid are frequently told they are “fine” and should return to work, with the condition often being dismissed as akin to a bad cold or flu. This prejudice and lack of awareness exacerbate the difficulties faced by those experiencing Long Covid.

To address these issues, we call upon the National Disabled Members Committee to:

1)Liaise with the NEC to organise more workshops within UNISON aimed at explaining the effects of Long Covid.

2)Develop and distribute comprehensive guidelines to branches to better support members experiencing long-term symptoms of Long Covid.

3)Advocate for greater public awareness and education about Long Covid, emphasising that it is a legitimate and serious medical condition.

By taking these steps, we can help ensure that those suffering from Long Covid receive the understanding, support, and accommodations they need.