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Terrence Higgins Trust
: 020 7831 0330

National AIDS helpline: 0800 567 123

As part of a recent campaign to address discrimination, the National AIDS Trust have produced a ‘HIV@Work’ pack for employers as a practical resource containing fact files on HIV and AIDS related issues. This can be purchased via their Link to an external websitewebsite

Issues regarding HIV and employment are a trade union matter - so employees should seek union help where necessary

HIV and work: your rights

Though World AIDS Day came and went on 1 December, there are an estimated 53,000 adults living with HIV in the UK, and for these people, the reality of their illness is something they must deal with on a daily basis.

Deborah Jack, chief executive of the National AIDS Trust, feels that many of these 53,000 affected individuals are discriminated against in the workplace, and says this occurs “despite that fact that anti-retroviral drugs now available and often enable HIV positive people to lead healthy lives”.

There are many issues that employees or job applicants must consider if they discover that they have HIV. They may feel that the decision regarding disclosure is one of the most difficult to make, but it is important to know that there is no obligation for them to tell their employer about their status, except in certain professions.

If there is a risk of exposure to bodily fluids or blood, it may be obligatory to disclose, and individuals concerned must seek advice from their occupational physician regarding this.

It is when HIV becomes symptomatic (ie the person begins to suffer with one or more opportunistic infections) that problems around disclosure may arise. For example, employees taking long periods of sickness absence might want to explain their situation to their employer, or may need adjustments made in the job to make it easier for them to do.

Hope Daley, national health & safety officer for UNISON, says: “Apart from telling their managers, the need to take time off for treatment and time off to recover from treatment are considerable concerns for those with HIV. Other worries include the rigid dietary regimes that are linked to the treatments, and whether the type of work they do will be affected by their condition.”

When Mark told his employer that he was HIV positive, they initially seemed supportive. On returning to work at the end of his sick leave, however, his manager told him that other staff felt uncomfortable around him and his condition may raise concerns with customers, so he was asked to look for another job.

In Mark’s case, this type of discrimination highlights the difficulties faced by employees with HIV when considering informing their employer of their status. However, important changes in the law mean that employers have increased responsibility to protect against discrimination involving employees with HIV or AIDS, and they have a responsibility to workers with HIV as they do to any other employee who has a life-threatening illness or disability.

New regulations recently came into force on 1 October under the Disability Discrimination Act (DDA) (1995), to include employers with fewer than 15 employees, and also public jobs such as the police and fire-fighters who were previously exempt.

The DDA makes it unlawful to treat a disabled employee or job applicant less favourably than any other employee, and requires the employer to take reasonable steps to prevent them being disadvantaged in the course of their work. It also protects against victimisation and harassment.

There is a new Disability Discrimination Bill, expected to be passed in spring 2005, which will give protection for employees from the moment of HIV diagnosis and will come into force in December 2005 (the rest of the bill will follow in 2006). Currently, it is only those who are in the symptomatic stages or have AIDS that are covered.

Knowing and asserting your rights at work when you are likely to be feeling highly vulnerable and anxious may not be easy, and it is imperative that as much support as possible is received to help make decisions and protect the employment position. Issues regarding HIV and employment are a trade union matter, and so employees should seek union help where necessary.

In extreme cases, employees with HIV have been dismissed from their job, though when discrimination occurs, according to UNISON’s Hope Daley, pressure to resign is a more likely occurrence. In a situation such as Mark’s, where he was forced to leave his job under duress, UNISON would urge members to obtain advice from their steward or representative.

Daley feels that it is extremely important for employers and member branches to have their policies in place before there is a need to use them. This means an individual disclosing their HIV status will not appear or feel responsible for any ‘special arrangements’ or ‘new’ adaptations to the work, and which could add to feelings of stigmatisation.

Deborah Jack, of the National AIDS Trust, says: “We would like to see more employers helping to put an end to HIV related discrimination by ensuring that they are compliant with disability discrimination law.”

Story by Andrea Wren

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WHAT YOU NEED TO KNOW

The Disability Discrimination Act 1995 prohibits discrimination at any stage of the employment process, from recruitment through to termination.

You do not have to tell a potential employer about your HIV status, and if it does not affect your ability to work, you shouldn’t feel obliged to inform them.

There is no law to stop your employer from asking whether you have HIV. You can ask why they need to know, but you may be in breach of contract if you lie about it.

If an employer does not hire you because of your HIV status, you may be able to bring a claim against them for discrimination.

An employer can ask job applicants to be tested for HIV with your consent. If you don’t comply, they can refuse to proceed with the application.

Unless the job involves exposure prone work or travel to countries where testing is compulsory for entry, there is no justification for requesting HIV testing.

An employer must make reasonable adjustments to your work to accommodate your illness, as they would need to with any other person with a disability.

 

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